In commemoration of World Sickle Cell Day, Oladipupo Foundation in Ogun has called on the governments, stakeholders, and individuals to take action in supporting those affected by Sickle Cell Disorder (SCD), calling for the bill that gives equal opportunity.
The call was made on Thursday, during a press conference held at the Iwe Iroyin press centre, in Abeokuta, the Ogun state capital, by the Oladipupo Foundation.
Speaking on the theme for the year 2025 celebration, "Global action, Local impact: Empowering communities for effective self-advocacy," the Foundation Chairman, Oladipupo, highlights the need for collective efforts to promote better care, access, and affordability for individuals and families affected by SCD.
He lamented that the cost of drugs for SDC warriors is highly expensive, which he described as a major concern for many who are from struggling families.
Oladipupo also advocated for increased awareness and understanding to reduce the stigma calling for inclusivity of opportunities for SDC warriors.
"The high cost of medication and treatment for SCD is a significant concern, with many individuals and families struggling to access life-saving therapies".
"People living with SCD face challenges in accessing employment opportunities, with many being unable to work due to the condition. SCD is often stigmatised; we are calling for awareness and understanding to reduce stigma and promote inclusivity", he said.
Oladipupo also told the government to invest more in research that could eradicate Sickle Cell Disorder in Nigeria, noting that Alternative medicine could be of help if well harnessed.
" We want the Governments, stakeholders, and philanthropists to invest in research aimed at improving the quality of life for people living with SCD".
He added that the National and State legislative arms should promote bills that give equal opportunities for people with SCD in areas such as job opportunities, empowerment, and access to quality healthcare. He submitted.
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